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REHABILITATION FROM HEART DISEASE: FAMILY CONCERNS
It is fair to say that the rehabilitation phase is usually an easier time for patient and family?certainly, as compared with the previous phases. By now, a balance in the family will have been established, but it may still take some time, maybe months, for a new, steady equilibrium within the family system to emerge. There will be times when the patient is dependent on the spouse as he or she progresses; as well, there will be the normal ups and downs of their journey, and there may well be “slippage”. Even so, for most, further recovery can be expected.
Your support is helpful to the patient, but are you supported yourself? You can benefit from the information exchange and camaraderie of time-limited educational group sessions offered to patients and their families. Finding out what can help you is particularly pertinent to those spouses or significant others who have taken more of the emotional brunt than the patient. You can decide whether intervention (say, counseling) may benefit you.
There may be questions of whether you can resume all aspects of your married life, especially those with which you were happy and that stopped because of the cardiac event. Attending a follow-up doctor’s appointment with the patient can be an invaluable way to restore and maintain the balance in the marital relationship, and, consequently, in the family as well (assuming doctor and patient give permission for you to be there).
Family relationships are dynamic; they change, and different members can be affected at different times by what is happening to the patient, especially in the early stages, but also later, as slippage can occur. Much will depend on the flexibility of the family system before the event. If it tended to be shaky then, it will be after a cardiac event as well, but by the time the patient is engaged in active rehabilitation, the restabilization of the family should already be well under way.
Family members as well as patients should be aware of what the patient and they themselves go through. They may also benefit from stress-management techniques: the “Ten Commandments of stress management” (below) apply to them as well as to patients. Parents should be on the lookout for untoward behaviour by children, who often display their emotional problems in unexpected ways. If there is a suspicion of an underlying problem, a professional should be consulted. As a spouse, you will be expected to be involved in the recovery of the patient, and you will have met the specialists and family doctor. You may also want to participate in group educational sessions that are now often included as part of informational sessions after a cardiac event or are optional in rehab programs.
We would be remiss if we failed to mention Heartmates, the book, video and organization created by Rhoda Levin, a spouse who experienced her husband?s heart attack and realized the insufficiency of support systems for caregivers. These materials are helpful in understanding what the spouse goes through and what can be done about it.
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