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“NO ONE TAKES ME SERIOUSLY”: LETTERS FROM BDD SUFFERERS AND THEIR FAMILIES ? SON?S PROBLEM
I received an extremely sad one sent to me by a woman whose son had been preoccupied with the shape of his head. She had just read about BDD in her local paper and realized that this was the disorder with which he had suffered for so long. She started her letter with the following:
“I read the enclosed article nearly a month after my dear son hanged himself in sheer desperation. Until we read the reporter’s words, none of us had any perception of my son’s suffering and feeling that no one could help him … My son had been telling us for many years how he felt and that he wanted to die.
The last letter shocked and haunted me for a long time. I spoke with the woman, who told me about her family’s and her son’s suffering and of her long and unsuccessful quest for a diagnosis and effective treatment. No one could tell her what his problem was. And she felt that no one had truly understood the depth of his suffering. She blamed herself for this. She felt she should have understood. In retrospect, her son’s suffering and hopelessness couldn’t have been clearer, but at the time it had been hard to understand?he was a handsome young man whose head looked completely normal. Her self-blame made his death all the more painful.
The tragedy of this young man’s death and other stories I heard spurred my resolve to learn more about this serious and underrecognized disorder?to start doing research so we could understand who gets it, how to identify it, and how to treat it.
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