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“NO ONE TAKES ME SERIOUSLY”: LETTERS FROM BDD SUFFERERS AND THEIR FAMILIES
BDD isn’t rare. While we have only limited data on its prevalence, these data suggest that it’s far more common than is generally recognized. Preliminary data from a growing number of researchers suggest that BDD may affect about 1% of adults in the general population, from more than 2% to 13% of students, and 13% of people hospitalized in a psychiatric hospital. It’s been found that 9% to 12% of people seeking treatment from a dermatologist, and 6% to 20% of people who receive cosmetic surgery, have BDD.
These numbers translate into many millions of people in the United States alone. While these findings need to be confirmed in larger-scale studies, I and other researchers have been surprised by the relatively high rates of BDD we’ve found in the groups we’ve studied. When stories about BDD have run in newspapers and magazines, I’ve been deluged with calls and letters. I hear from people who wonder if they have BDD and want treatment, from family members who think a loved one may be suffering from the disorder, from professionals asking for information and sometimes for help for their own family members. One woman, who read about BDD in her local newspaper, wrote the following:
I am 45 years old?and I don’t ever remember not feeling this way. It is very
difficult to discuss with anyone, as no one seems to take me seriously or can relate
to the amount of pain I feel. Therapy has helped me work on many of my other
issues, but I seemed to skirt around this more serious problem, which didn’t get
addressed… The hardest part for me in this is that no one takes me seriously
and so I never feel heard. It is very distressing and has affected many areas of my
life.
The sense of isolation and aloneness implied in this letter is more directly conveyed in the following letter, which a woman wrote to me after seeing a story about BDD on Dateline NBC in 1993:
I am 29 and never knew that there was anyone else out there who thought the same way I do about themselves.
*14/204/8*